Informed Consent & Disparities

PUBLICATIONS

2014
  • Secunda K, Levitsky J. Reply to: Attitudes of Italian liver transplantation centres towards eligibility of controversial candidates. Liver Transpl. 2014.
  • Guevara Y, Gaber R, Clayman ML, Gordon EJ, Friedewald J, Robinson JK. Sun Protection Education for Diverse Audiences: Need for Skin Cancer Pictures. Journal of cancer education : the official journal of the American Association for Cancer Education. 2014.
  • Gordon EJ, Reddy E, Gil S, Feinglass J, Rodde J, Abecassis MM, et al. Culturally competent transplant program improves Hispanics’ knowledge and attitudes about live kidney donation and transplant. Prog Transplant. 2014;24(1):56-68.
  • Gordon EJ, Ison MG. Decision Aids for Organ Transplant Candidates. Liver Transpl. 2014.
  • Gordon EJ, Gill JS. Reply (invited response to 2 letters re Iran editorial). Am J Transplant. 2014;14(5):1226.
2013
  • Secunda K, Gordon EJ, Sohn MW, Shinkunas LA, Kaldjian LC, Voigt MD, et al. National survey of provider opinions on controversial characteristics of liver transplant candidates. Liver Transpl. 2013;19(4):395-403.
  • Ricardo AC, Yang W, Lora CM, Gordon EJ, Diamantidis CJ, Ford V, et al. Limited health literacy is associated with low glomerular filtration in the Chronic Renal Insufficiency Cohort (CRIC) study. Clinical nephrology. 2013.
  • Gordon EJ, Gill JS. Where There Is Smoke There Is Fire: The Iranian System of Paid Donation. Am J Transplant. 2013.
  • Gordon EJ, Fink JC, Fischer MJ. Telenephrology: a novel approach to improve coordinated and collaborative care for chronic kidney disease. Nephrol Dial Transplant. 2013;28(4):972-81.
  • Gordon EJ, Butt Z, Jensen SE, Lok-Ming Lehr A, Franklin J, Becker Y, et al. Opportunities for shared decision making in kidney transplantation. Am J Transplant. 2013;13(5):1149-58.
  • Gordon EJ. Ethical considerations in live donor transplantation: should complications be tolerated? Curr Opin Organ Transplant. 2013.
2012
  • Tong A, Chapman J, Israni A, Gordon E, Craig J. Qualitative research in transplantation: Recent contributions to clinical care and policy American Journal of Transplantation. 2012:In Press.
  • Smith SG, von Wagner C, McGregor LM, Curtis LM, Wilson EA, Serper M, et al. The Influence of Health Literacy on Comprehension of a Colonoscopy Preparation Information Leaflet. Dis Colon Rectum. 2012;55(10):1074-80.
  • Secunda K, Gordon EJ, Sohn MW, Shinkunas LA, Kaldjian LC, Voigt MD, et al. A national survey of provider opinions on controversial characteristics of liver transplant candidates. Liver Transpl. 2012.
  • Gordon EJ, Rodde J, Gil S, Caicedo JC. Quality of Internet education about living kidney donation for Hispanics. Prog Transplant. 2012;22(3):294-303.
  • Gordon EJ, Reddy E, Ladner DP, Friedewald J, Abecassis MM, Ison MG. Kidney transplant candidates’ understanding of increased risk donor kidneys: a qualitative study. Clin Transplant. 2012;26(2):359-68.
  • Gordon EJ, Ladner DP, Baker T. Standardized information for living liver donors. Liver Transpl. 2012;18(10):1260-1.
  • Gordon EJ, Ladner DP, Baker T. Letter to the editor. Liver Transpl. 2012.
  • Gordon EJ, Ladner DP. Gender inequities pervade organ transplantation access. Transplantation. 2012;94(5):447-8.
  • Gordon EJ, Bergeron A, McNatt G, Friedewald J, Abecassis MM, Wolf MS. Are informed consent forms for organ transplantation and donation too difficult to read? Clin Transplant. 2012;26(2):275-83.
  • Gordon EJ. Living Organ Donors’ Stories: (Unmet) Expectations about Informed Consent, Outcomes, and Care. Narrative inquiry in bioethics. 2012;2(1):1-6.
  • Gordon EJ. Informed Consent for Living Donation: A Review of Key Empirical Studies, Ethical Challenges and Future Research. Am J Transplant. 2012.
  • Gordon EG, Butt Z, Jensen SE, Lehr AL, Franklin J, Becker Y, et al. Opportunities for Shared Decision Making in Kidney Transplantation. American Journal of Transplantation. 2012.
2011
  • Robinson JK, Turrisi R, Mallett KA, Stapleton J, Boone SL, Kim N, et al. Efficacy of an educational intervention with kidney transplant recipients to promote skin self-examination for squamous cell carcinoma detection. Archives of dermatology. 2011;147(6):689-95.
  • Lora CM, Gordon EJ, Sharp LK, Fischer MJ, Gerber BS, Lash JP. Progression of CKD in Hispanics: potential roles of health literacy, acculturation, and social support. Am J Kidney Dis. 2011;58(2):282-90.
  • Gordon EJ, Lash JP. A timely change in CKD delivery: promoting patient education. Am J Kidney Dis. 2011;57(3):375-7.
  • Gordon EJ, Daud A, Caicedo JC, Cameron KA, Jay C, Fryer J, et al. Informed consent and decision-making about adult-to-adult living donor liver transplantation: a systematic review of empirical research. Transplantation. 2011;92(12):1285-96.
  • Gordon EJ, Beauvais N, Theodoropoulos N, Hanneman J, McNatt G, Penrod P, Jensen S, Franklin J, Sherman L, Ison MG. The Challenge of Informed Consent for Increased Risk Living Donation and Transplantation. American Journal of Transplantation. In Press.
  • Gordon EJ, Bergeron A, McNatt G, Friedewald J, Abecassis MM, Wolf MS. Are Informed Consent Forms for Organ Transplantation and Donation Too Difficult to Read? Clinical Transplantation 2011; In press.
  • Lora C, Gordon EJ, Sharp LK, Fischer MJ, Gerber BS, Lash J. Progression of Chronic Kidney Disease in Hispanics: Potential Roles of Health Literacy, Acculturation, and Social Support. American Journal of Kidney Diseases 2011;58(2):282-290.
  • Robinson JK, Turrisi R, Mallett KA, Stapleton J, Boone SL, Kim N, Riyat NV, Gordon EJ. Efficacy of an Educational Intervention With Kidney Transplant Recipients to Promote Skin Self-examination for Squamous Cell Carcinoma Detection. Archives of Dermatology 2011;147(6):689-695.
  • Gordon EJ, Lash J. A Timely Change in Chronic Kidney Disease Care Delivery: Promoting Patient Education. Invited Editorial. American Journal of Kidney Diseases 2011;57(3):375-357.
2010
  • Robinson JK, Alam M, Ashourian N, Khan M, Kundu R, Laumann AE, et al. Skin cancer prevention education for kidney transplant recipients: a systematic evaluation of Internet sites. Prog Transplant. 2010;20(4):344-9.
  • Khosla N, Gordon E, Nishi L, Ghossein C. Impact of a chronic kidney disease clinic on preemptive kidney transplantation and transplant wait times. Prog Transplant. 2010;20(3):216-20.
  • Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Conti D, et al. Prevalence and determinants of physical activity and fluid intake in kidney transplant recipients. Clin Transplant. 2010;24(3):E69-81.
  • Gordon EJ, Ladner DP, Caicedo JC, Franklin J. Disparities in kidney transplant outcomes: a review. Semin Nephrol. 2010;30(1):81-9.
  • Gordon EJ, Frader J, Goldberg AM, Penrod D, McNatt G, Franklin J. In response to: Testa et al. ‘Elective surgical patients as living organ donors: a clinical and ethical innovation’. Am J Transplant. 2010;10(3):704-5; author reply 6.
  • Gordon EJ, Conti D. The quality of health insurance service delivery for kidney transplant recipients: a patient perspective. Am J Transplant. 2010;10(10):2208-14.
  • Gordon EJ, Caicedo JC, Ladner DP, Reddy E, Abecassis MM. Transplant center provision of education and culturally and linguistically competent care: a national study. Am J Transplant. 2010;10(12):2701-7.
  • Buoy AG, Yoo S, Alam M, Ortiz S, West DP, Gordon EJ, et al. Distribution of skin type and skin cancer in organ transplant recipients. Archives of dermatology. 2010;146(3):344-6.
  • Gordon E, Frader J, Goldberg A, Penrod D, McNatt G, Franklin J. Organ donors: a clinical and ethical innovation. American Journal of Transplantation. 2010;10(3):704-5.
  • Gordon EJ, Caicedo JC, Ladner DP, Reddy E, Abecassis MM. Transplant center provision of education and culturally and linguistically competent care: a national study. Am J Transplant. 2010;10(12):2701-7.
  • Gordon EJ, Conti D. The quality of health insurance service delivery for kidney transplant recipients: a patient perspective. Am J Transplant. 2010;10(10):2208-14. PMCID: 2954684.
  • Gordon EJ, Frader J, Goldberg AM, Penrod D, McNatt G, Franklin J. In Response to: Testa et al. Elective Surgical Patients as Living Organ Donors: A Clinical and Ethical Innovation. American Journal of Transplantation. 2010;10(3):704-5.
  • Gordon EJ, Ladner DP, Caicedo JC, Franklin J. Disparities in Kidney Transplant Outcomes: A Review. Seminars in Nephrology. 2010;30(1):81-9.
2009
  • Gordon EJ, Wolf MS. Health literacy skills of kidney transplant recipients. Prog Transplant. 2009;19(1):25-34.
  • Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Yucel R, et al. Longitudinal analysis of physical activity, fluid intake, and graft function among kidney transplant recipients. Transpl Int. 2009;22(10):990-8.
  • Gordon EJ, Prohaska TR, Gallant M, Siminoff LA. Self-care strategies and barriers among kidney transplant recipients: a qualitative study. Chronic Illn. 2009;5(2):75-91.
  • Gordon EJ, Gallant M, Sehgal AR, Conti D, Siminoff LA. Medication-taking among adult renal transplant recipients: barriers and strategies. Transpl Int. 2009;22(5):534-45.
  • Gordon EJ, Caicedo JC. Ethnic advantages in kidney transplant outcomes: the Hispanic Paradox at work? Nephrol Dial Transplant. 2009;24(4):1103-9.
  • Devraj R, Gordon EJ. Health literacy and kidney disease: toward a new line of research. Am J Kidney Dis. 2009;53(5):884-9.
2008
  • Gordon EJ, Prohaska TR, Sehgal AR. The financial impact of immunosuppressant expenses on new kidney transplant recipients. Clin Transplant. 2008;22(6):738-48.
  • Gordon EJ, Caicedo JC. Ethnic Advantages in Kidney Transplant Outcomes: The Hispanic Paradox at Work? Nephrology Dialysis Transplantation 2009;24(4):1103-9. [PMID: 19075197] e-pub Dec 15, 2008. PMCID: PMC2721429

NATIONAL PRESENTATIONS

2014
  • Gordon E, Ortiz K, Vera K, Martinez S, Sohn MW, Chang CH, et al., editors. A Decision Aid for Kidney Transplant Candidates about Increased Risk Donor (IRD) Kidneys: A Randomized Controlled Trial of Increased Knowledge. World Transplant Congress; 2014; San Francisco, California
2013
  • Patel C, Gordon E, Sohn M, editors. A Public Survey of Acceptable Financial Incentives for Living Donation: Challenging Assumptions and Reinvigorating the Debate. American Transplant Congress; 2013; Seattle, WA.
2012
  • Gordon EJ, editor. Promoting Health Literacy to Improve Post Transplant Outcomes. American Transplant Congress; 2012 June 5, 2012; Boston, MA.
  • Gordon EJ, editor. Cultural and Literacy Barriers: How Are We Doing? Could We Do Better? American Society of Nephrology; 2012 November 2, 2012.; San Diego, CA.
  • Gordon E, Baker T, Skaro A. Informed Consent for Live Liver Donors: A Longitudinal Study American Transplant Congress; Boston, MA 2012.
  • Gordon E, Leventhal J, Friedewald J. Informed Consent, Decisional Conflict, Anxiety, and Preparedness in Living Kidney Donor Candidates. American Transplant Congress; Boston, MA2012.
  • Ladner DP, Skaro AI, Ross OA, Lakhoo K, Woods D, Gordon EJ, et al. The Cascade Effect of Delays and Wasted Resources in Kidney Transplant Surgery. American Transplant Congress; Boston, MA2012.
  • Secunda K, Gordon E, Sohn M-W, Kaldjian L, Shinkunas L, Levitsky J. Controversial Patient Characteristics in Liver Transplant Candidates: A National Survey. American Transplant Congress; Boston, MA2012.
2011
  • Gordon E, Caicedo J, Reddy E, Rodde J, Gil S, Wang E, et al., editors. Impact of Cultural Competent Hispanic Transplant Program on Knowledge and Attitudes about Living Kidney Donation. American Transplant Congress; 2011; Philadelphia, PA.
  • Di Sabato D, Caicedo J, Skaro A, Wang E, Superina R, editors. Outcomes of Liver Transplantation for the Small Infant – An Analysis of the National Registry. American Transplant Congress; 2011; Philadelphia, PA.
  • Beauvais N, Warren E, Tambur A, Leventhal J, Friedewald J, editors. Improved Efficiency with the Evolution of a Single Center Incompatible Kidney Program-Transition from Desensitization to Kidney Paired Donation. American Transplant Congress; 2011; Philadelphia, PA.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC: The Implementing of a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. AcademyHealth Annual Research Meeting; 2011; Seattle, Washington.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC – The Implementing of a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. International Science of Team Science (SciTS) Conference; 2011; Chicago, IL.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC – Implementing a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. 7th Annual Lewis Landsberg Research Day; 2011; Chicago, IL.
  • Lovasik B, Skaro A, Daud A, Gordon E, Caicedo J, Woods D. The Influence of Systems and Processes on Cold−Ischemic Time in Liver Transplantation. American Transplant Congress; 2011; Philadelphia, PA.
  • Lyuksemburg V, Jay C, Wang E, Ladner D, Caicedo J, Holl J. The Impact of Donation after Cardiac Death Livers on Hepatitis C Virus Recurrence following Liver Transplantation. 7th Annual Lewis Landsberg Research Day 2011; Chicago, IL.
  • Gordon EJ. Challenges to living with a kidney transplant: A Patient Perspective. Invited Paper for presentation in the Session, “Current Challenges in Transplantation,” at the National Kidney Foundation Spring Clinical Meeting. Las Vegas, NV. April 29. 2011
 2010
  • Gordon E, Caicedo J, Ladner D, Daviglus M, editors. Variability in Transplant Center Provision of Education about Kidney Transplantation and Living Donation. American Transplant Congress; 2010 San Diego, CA. .
  • Gordon E, Reddy E, Ladner D, Friedewald J, Ison M, editors. Transplant Candidate Perceptions of Risk and Specific Informed Consent for CDC-Defined High Risk Donor Organs. American Transplant Congress; 2010; San Diego, CA.
  • Gordon E, Caicedo J, Ladner D, Daviglus M, editors. Transplant Center Provision of Linguistically and Culturally Competent Care: Opportunity for Quality Improvement. American Transplant Congress; 2010; San Diego, CA.
  • Caicedo JC, Wang E, Skaro AI, Ladner DP, Superina R, Abecassis MM, editors. SPLIT livers are as good as whole livers for liver transplant recipients with MELD 15-35. American Transplant Congress; 2010; San Diego, CA.
2009
  • Rocca J, Caicedo J, Daud A, Gil S, Skaro A, Ladner D, et al., editors. Long-Term Outcomes of Hispanic Liver Transplantation Recipient – The Hispanic Paradox. American Transplant Congress; 2009; Boston, MA. .
  • Caicedo JC, Gil S, Daud A, Skaro AI, Ladner DP, editors. Long-Term Outcomes of Pediatric Kidney Transplantation in Hispanics. American Transplant Congress; 2009; Boston, MA.
2008
  • Caicedo J, Butt Z, Halgrimson W, Preczewski L, Daud A, editors. Outcomes after Kidney Transplantation in Hispanis. American Transplant Congress; 2008 June 2008; Toronto, ON, Canada.