Quality of Life

PUBLICATIONS

2014
  • Butt Z, Parikh Needhar D, Skaro A, Ladner D, Cella D. Quality of Life, Risk Assessment, and Safety Research in Liver Transplantation: New Frontiers in Health Services and Outcomes Research. Current Opinion in Organ Transplantation 2012.
  • Ramey NA, Butt Z, Burkat CN, Rose JG, Lucarelli MJ. Patient-Reported Outcomes: Comprehensive Analysis for the Oculofacial Clinician. Ophthalmic plastic and reconstructive surgery. 2014.
  • Mohammad S, Li Z, Englesbe M, Skaro A, Alonso E. Withdrawal of Immunosuppression Following Pediatric Liver Transplantation: A Markov Analysis. Journal of pediatric gastroenterology and nutrition. 2014.
  • Butt Z, Lai JS, Beaumont JL, Kaiser K, Mallick R, Cella D, et al. Psychometric properties of a brief, clinically relevant measure of pain in patients with hepatocellular carcinoma. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2014.
2013
  • Parikh ND, Skaro AI. Donation after cardiac death liver transplantation: another fly in the ointment. Liver Transpl. 2013;19(1):1-2.
  • Parikh ND, Levitsky J. Hepatotoxicity and drug interactions in liver transplant candidates and recipients. Clin Liver Dis. 2013;17(4):737-47.
  • Kaiser K, Mallick R, Butt Z, Mulcahy MF, Benson AB, Cella D. Important and relevant symptoms including pain concerns in hepatocellular carcinoma (HCC): a patient interview study. Support Care Cancer. 2013.
  • Butt ZA, Wilkins MJ, Hamilton E, Todem D, Gardiner JC, Saeed M. Hepatitis B and C co-infection in HIV/AIDS population in the state of Michigan. Epidemiol Infect. 2013:1-8.
  • Butt Z, Peipert J, Webster K, Chen C, Cella D. General population norms for the Functional Assessment of Cancer Therapy-Kidney Symptom Index (FKSI). Cancer. 2013;119(2):429-37.
2012
  • Sundaram SS, Alonso EM, Zeitler P, Yin W, Anand R. Obesity after Pediatric Liver Transplantation: Prevalence and Risk Factors. Journal of pediatric gastroenterology and nutrition. 2012.
  • Parikh N, Martel-Laferriere V, Zhang X, Dieterich D, Fiel MI, Perumalswami P. Hepatocellular carcinoma in a noncirrhotic patient with HIV: a case report and review of the literature. Semin Liver Dis. 2012;32(2):186-92.
  • Parikh N, Butt Z. The relative contribution of hepatic encephalopathy to burden in patients with cirrhosis. Am J Gastroenterol. 2012;107(3):486; author reply -7.
  • Parikh N, Baker T, Ladner DP, Skaro A, Cahan J, Salem R, et al. A Probabilistic Model to Predict Hepatocellular Carcinoma Tumor Growth and Vascular Invasion. Liver Transpl. 2012;In Print.
  • Ng VL, Alonso EM, Bucuvalas JC, Cohen G, Limbers CA, Varni JW, et al. Health status of children alive 10 years after pediatric liver transplantation performed in the US and Canada: report of the studies of pediatric liver transplantation experience. J Pediatr. 2012;160(5):820-6 e3.
  • Mohammad S, Hormaza L, Neighbors K, Boone P, Tierney M, Azzam RK, et al. Health status in young adults two decades after pediatric liver transplantation. Am J Transplant. 2012;12(6):1486-95.
  • McLin VA, Anand R, Daniels SR, Yin W, Alonso EM. Blood pressure elevation in long-term survivors of pediatric liver transplantation. Am J Transplant. 2012;12(1):183-90.
  • Liem RI, Anand R, Yin W, Alonso EM. Risk factors for chronic anemia in pediatric orthotopic liver transplantation: analysis of data from the SPLIT registry. Pediatric transplantation. 2012;16(2):137-43.
  • Lerret SM, Menendez J, Weckwerth J, Lokar J, Mitchell J, Alonso EM. Essential components of transition to adult transplant services: the transplant coordinators’ perspective. Prog Transplant. 2012;22(3):252-8.
  • Jensen SE, Butt Z, Bill A, Baker T, Abecassis MM, Heinemann AW, et al. Quality of life considerations in upper limb transplantation: review and future directions. The Journal of hand surgery. 2012;37(10):2126-35.
  • Butt Z, Parikh ND, Skaro AI, Ladner D, Cella D. Quality of life, risk assessment, and safety research in liver transplantation: new frontiers in health services and outcomes research. Curr Opin Organ Transplant. 2012;17(3):241-7.
  • Butt Z, Parikh ND, Beaumont JL, Rosenbloom SK, Syrjala KL, Abernethy AP, et al. Development and validation of a symptom index for advanced hepatobiliary and pancreatic cancers: The National Comprehensive Cancer Network Functional Assessment of Cancer Therapy (NCCN-FACT) Hepatobiliary-Pancreatic Symptom Index (NFHSI). Cancer. 2012.
  • Butt Z, Parikh Neehar D, Skaro A, Ladner D, Cella D. Quality of Life, Risk Assessment, and Safety Research in Liver Transplantation: New Frontiers in Health Services and Outcomes Research. Current Opinion in Organ Transplantation 2012.
2011
  • Varni JW, Limbers CA, Sorensen LG, Neighbors K, Martz K, Bucuvalas JC, et al. PedsQL Cognitive Functioning Scale in pediatric liver transplant recipients: feasibility, reliability, and validity. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2011;20(6):913-21.
  • Varni JW, Limbers CA, Neighbors K, Schulz K, Lieu JE, Heffer RW, et al. The PedsQL Infant Scales: feasibility, internal consistency reliability, and validity in healthy and ill infants. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2011;20(1):45-55.
  • Sundaram SS, Alonso EM, Narkewicz MR, Zhang S, Squires RH. Characterization and outcomes of young infants with acute liver failure. J Pediatr. 2011;159(5):813-8 e1.
  • Sorensen LG, Neighbors K, Martz K, Zelko F, Bucuvalas JC, Alonso EM. Cognitive and academic outcomes after pediatric liver transplantation: Functional Outcomes Group (FOG) results. Am J Transplant. 2011;11(2):303-11.
2010
  • Parikh ND, Ladner D, Abecassis M, Butt Z. Quality of life for donors after living donor liver transplantation: A review of the literature. Liver Transplantation. 2010;16(12):1352-8.
  • Alonso EM, Limbers CA, Neighbors K, Martz K, Bucuvalas JC, Webb T, Varni J, and the SPLIT Functional Outcomes Group. Cross-sectional Analysis of Health Related Quality of Life in Pediatric Liver Transplant Recipients. Journal of Pediatrics 2010;156:270-6.
  • Weissberg-Benchell J, Zielinski TE, Rodgers S, Neff Greenley R, Askenazi D, Goldstein SL, Fredericks EM, McDiarmid S, Williams L, Limbers CA, Tuzinkiewicz K, Lerret S, Alonso EM, Jarni JW. Health-Related Quality of Life: Feasibility, Reliability and Validity of the PedsQL™ Transplant Module. American Journal of Transplantation. 2010; 10(7):1677-85.
  • Butt, Z., Ladner, D. P., Parikh, N. Quality of life in actual living liver donors versus potential living liver donors [Letter to the Editors]. Liver Transplantation, 16, 691.
  • Butt, Z., Gordon, E. J., Penrod, D., Sherman, L. A. , on behalf of the Chicago Transplant Ethics Consortium. Which patients with ESRD are willing to pay for a kidney? [Letter to the Editors]. American Journal of Transplantation, 2010
  • Parikh, N. D., Ladner, D., Abecassis, M. M., & Butt, Z. Quality of life in donors after living donor liver transplantation: A review of the literature. Liver Transplantation, 2010.
2009
  • Petroski R, Rodgers S, Sullivan C, Grady K, Backer CL, Pahl E. Quality of life in adult survivors 10+ years post pediatric heart transplantation. J Heart Lung Transplant 2009;28(7):661-666.
  • Alonso EM. Quality of life for pediatric liver recipients. Liver Transpl. 2009;15 Suppl 2:S57-62.
  • Alonso EM, Sorensen LG. Cognitive development following pediatric solid organ transplantation. Curr Opin Organ Transplant. 2009;14(5):522-5.
  • Rao D, Butt Z, Rosenbloom S, Robinson D, Jr., Von Roenn J, Kuzel TM, et al. A Comparison of the Renal Cell Carcinoma-Symptom Index (RCC-SI) and the Functional Assessment of Cancer Therapy-Kidney Symptom Index (FKSI). J Pain Symptom Manage. 2009;38(2):291-8.
2008
  • Butt Z, Yount SE, Caicedo JC, Abecassis MM, Cella D. Quality of life assessment in renal transplant: review and future directions. Clin Transplant. 2008;22(3):292-303.

NATIONAL PRESENTATIONS

2014
  • Jensen SE, Butt Z, Heinemann AW, Cella D, Kuiken T, Dumanian GA, editors. Adjustment to Amputation and Attitudes Toward Upper Limb Transplantation: Implications for Patient Selection. American Association for Hand Surgery 2014 January Kauai, HI.
  • Jensen SE, Butt Z, Heinemann AW, Cella D, Kuiken T, Dumanian GA, editors. Perceptions of Upper Limb Transplantation Benefits and Risks: The Amputee Perspective American Association for Hand Surgery; 2014 January Kauai, HI.
  • Heldman M, Gordon E, Sohn MW, Butt Z, Mohammad S, Alonso E, et al., editors. Adult Transplant Hepatologists’ Perceptions of the Transition from Pediatric to Adult Care: A National Survey. World Transplant Congress; 2014; San Francisco, California
2013
  • Dew MA, Butt Z, DiMartini A, Ladner D, Simpson MA, editors. Psychosocial Outcomes 3 to 9 Years After Living Liver Donation in the Adult to Adult Living Donor Liver Transplantation Cohort Study (A2ALL). American Transplant Congress; 2013; Seattle, WA.
  • Butt Z, Mallick R, Mulcahy M, Benson A, Cella D, Kaiser K, editors. Pain and Other Symptoms in Patients with Hepatocellular Carcinoma (HCC): A Qualitative Analysis American Society of Clinical Oncology 2013 June; Chicago, IL.
  • Butt Z, Lai JS, Beaumont J, Kaiser K, Mallick R, Cella D, et al., editors. Psychometric Properties of a Brief, Clinically-Relavant Measure of Pain in Patients with Hepatocellular Carcinoma International Society for Quality of Life Research; 2013 October Miami, FL.
  • Butt Z, editor. The Importance of Assessing Quality of Life in Outcomes Research. American Transplant Congress; 2013; Seattle, WA.
2012
  • Parikh ND, Skaro AI, Beaumont JL, Rosenbloom SK, Cella D, editors. Development and Validation of a Symptom Index for Advanced Hepatobiliary Cancers: The NCCN-FACT Hepatobiliary Symptom Index. Digestive Disease Week 2012; San Diego, CA.
  • Parikh N, editor. The Effect of Donor-Recipient Age Difference on Outcomes After Liver Transplant. American Association for the Study of Liver Diseases; 2012; Boston, MA.
2011
  • Mohammad S, Hormaza L, Neighbors K, Boone P, Azzam R, Butt Z. Quality of Life and Health Status in Young Adults Two Decades after Pediatric Liver Transplantation. American Transplant Congress; 2011; Philadelphia, PA.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC: The Implementing of a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. AcademyHealth Annual Research Meeting; 2011; Seattle, Washington.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC – The Implementing of a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. International Science of Team Science (SciTS) Conference; 2011; Chicago, IL.
  • Ladner D, Gordon E, Ross O, Skaro A, Woods D, Butt Z. NUTORC – Implementing a Transdisciplinary Scientific Collaboration to Advance Transplantation Outcomes Research. 7th Annual Lewis Landsberg Research Day; 2011; Chicago, IL.
  • Butt Z, Gil S, Caicedo J, editors. Defining and Tracking Sub-optimal Quality of Life in a Longitudinal Cohort of Kidney Recipients. Amercian Transplant Congress; 2011; Philadelphia, PA.
  • Butt Z, Parikh N, Lyuksemburg V, Daud A, Lee J, Ladner D, editors. Prevalence and Predictors of Sub-optimal Liver Recipient Quality of Life. American Transplant Congress; 2011; Philadelphia, PA.
2010
  • Lee J, Butt Z, Ladner D, Parikh N, Levitsky J, editors. Association of Immunosuppression with quality of life in liver transplant recipients. American Transplant Congress; 2010; San Diego, CA.
  • Ladner D, Butt Z, Gillespie B, Tong L, Brown R, Freise C. Long -term health related quality of life (HRQOL) after liver donation (LD) in the Adult to Adult Living Donor Liver Transplantation Cohort (A2ALL) Study. Annual Meeting of the American Association for the Study of Liver Diseases; 2010; Boston, MA.
  • Lee, J., Butt, Z., Ladner, D., Parikh, N., & Levitsky, J. Association of immunosuppression with quality of life in liver transplant recipients. Poster presented at the annual meeting of the American Transplant Congress. 2010; San Diego, CA.
  • Butt Z, Jensen S, Daud A, Sprague A, Friedewald J. What is the quality of life impact of living donor nephrectomy? Presented at Clinical and Translational Research and Education Meeting: ACRT/SCTS Joint Annual Meeting 2010; Washington, DC.
2009
  • Rocca J, Caicedo J, Daud A, Gil S, Skaro A, Ladner D, et al., editors. Long-Term Outcomes of Hispanic Liver Transplantation Recipient – The Hispanic Paradox. American Transplant Congress; 2009; Boston, MA.
2008
  • Sorenson L, Neighbors K, Marts K, Zelko F, Bucuvalas J, Alonso E, editors. Intellectual and academic outcomes following pediatric liver transplantation – preliminary results of the Functional Outcomes Group. American Association for the Study of Liver Diseases Annual Meeting; 2008; San Francisco, CA.
  • Alonso E, editor. Long-Term Quality of Life for Pediatric Transplant Recipients. American Transplant Congress; 2008; Toronto, Ontario, CA.